There is something about getting the actual transplant date today that rocked my world somewhat. We have known this is coming for such a long time, I feel like somehow it should have been like any other phone call. Like catching up with my husband to discuss who is driving whom to what activity that night, or scheduling a lunch date with a friend. No, this call shook me and I wasn’t expecting it. Somehow having a date makes things so much more real. Now it’s time to start dealing with the little things. Like really dealing with things. For real.
What is the best way to help the kids through this? Should we pull them out of school early? Is it best to leave them with the structure of the school day? Is it fair to leave them to write final exams after saying goodbye to me, knowing I won’t be back for months? It makes my stomach turn.
Who is going to be my “full time caregiver” ( I need one assigned and in Calgary with me 2 days post transplant for about 2.5 months) Of course Shaye and I would like it to be him, but what about work? Kids? Maybe we will have to submit a “list” of revolving caregivers. Can we do that?
When will we leave for Calgary? What will we decide finally about accommodations, that is so hard to sort out when I will be in and out of hospital, but Shaye, the kids etc need to come and go? We are surrounded by such wonderful people who have offered their homes as a place for us to stay. The BMT staff suggested staying close to the Tom Baker centre and have given us a few options to consider, but they are all costly when you consider 3 months time. There are appointments here, and physicals there coming up, so much is going through my head, I feel a little lost in it all.
These are just some of the little things we will need to make decisions about soon. I am praying they all just sort of fall into place, because the overriding thought for me today is that it is happening. Risks and all things considered, it is happening. I’m excited, and terrified.
It’s a date. Just another day. June 18th Admission. June 26th Transplant Day.
Trish xo
Trish G 
The best of luck to you Trish, high school was so many years ago and I have always wondered how people were doing. When I heard about what you have been going through, it hit hard – especially getting older all you want to hear is that everyone you know or use to know are doing awesome. Sharing your story is incredible and it truly helps others who are suffering one way or another. You are an inspiration and if there is every anything I can do to help you please ask. THANK YOU SO MUCH FOR SHARING YOUR JOURNEY, i will continue to pray for you…
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