My Cup Runneth Over….

This has been one of those weeks.  You know the kind, it felt like a month at least.

On Tuesday, I had another appointment at the Tom Baker Clinic in Calgary.  My husband was not able to take the day off this time, so one of my very best BFFs drove me.  That 3 hour drive may not seem like a big deal to some, but I am lucky if I can stay awake for the trek down, let alone the drive back, so I need a “chaperone”!

My husband and I have used many of our Calgary appointments this year as an opportunity to spend time with and catch up with our dear friends Jeff & Didja Nawolsky.  We looked forward to a quick lunch of sushi (yes, sushi…anyone who knows us knows how much Shaye thinks of these 2 to agree to meet for SUSHI). Shaye worked with Didja at CFCN when we lived in Calgary, where we had many great times with them.  Then, shortly after moving to Edmonton in 1999, Didja was involved in the production of “Snow Day”.  A movie filmed in our winter wonderland starring Chevy Chase, and thanks to Didj, included an “accredited” role for Shaye.  It was fun having her back in the same city, we had a great time shopping, and even found the dress she purchased for her wedding to Jeff the following summer.  Their wedding was such a beautiful day.  You can just tell when 2 people are made for each other.  The love, and laughter was infectious.  Didja was always smiling, always laughing, and she had found someone perfect to share that with.

A few years later, life took a difficult turn.  Many would say a “roadblock”, but Didja rarely let anything slow her down.  She became ill.  It was a crazy time, we received email after email from Jeff doing his best to explain what was going on and asking for prayer for her and her physicians to help her.  It seemed every treatment was a band-aid that caused a problem somewhere else.  To everyone’s amazement, Didja never  abandoned her “cup half full” way of looking at life though.

You never know with certainty, why people come and go from your life, but I always do my best to see what the relationship with any given person can teach me about how to be a better person, about how to treat others.  Some people treat you in a way that shows you glaring example of how  to avoid treating others.  Others, shining examples of the right way to treat others.  Obviously, she was the latter.

I learned a few things from my relationship with Didj.  First, I was disappointed in myself because we lost touch for a time, at a time when I felt she needed support the most.  There was no reason really except life just kept happening.  A second child for Shaye and I, going back to work etc.  It terrified me to think of what may have happened to her in those years, but at the same time, I didn’t pick up the phone to call.  I am so thankful for Facebook, and the way it brought our families back together.  We talked about this a few years later when we were back in touch, but I learned in that moment how powerful forgiveness can be, and that clearly the way one person sees a situation will never be exactly the same as another.  Just be happy for what you have in the moment and don’t waste any time worrying about what was.  It has helped me to understand how people feel when we don’t talk for a while and they express regret over not calling.  It’s ok.  It’s really ok.  Life happens.  I don’t assume someone hasn’t called because they are angry, or there is some kind of problem.  In fact, if you do have a problem, it’d be better for everyone involved if you did tell me.  If you don’t, I’ll choose to believe we are good. We are ok.

Second, I learned to KEEP IN TOUCH.  Take a second to try to send a quick “hey…haven’t heard from you in a while, haven’t seen you on Facebook, hope all is well”.  Or send an e-mail, or a text. Make a call.  This is the beauty of social media.  People have their reservations about it, but there is no doubt it has helped us stay in touch with people and maintain relationships we may have otherwise let slip away.

Third, there is no end to the ways our friends can help us, and we can help them without even really knowing.  Our Sushi lunches were therapy sessions for both of us, I think.  It’s hard to know how it feels to be a “sick person”, unless you have been there.  We could speak openly about the effects on our children, our husbands, our families.  We could help change perspective on something.  There were so many times she would say something that would completely change my thinking.  I can only hope that I gave back to her even a sliver of what she gave me.

Finally, the MOST obvious lesson I learned from my friend Didja, (and anyone who ever met her always said the same thing),  is that life can really be what YOU make it.  Your cup can most certainly be half full or half empty regardless of what is in it.  You can waste time complaining about what you have been dealt, or use it to empower you to be a better person who leaves a positive mark on this world.  None of us are perfect, we all have bad days.  Let those happen and wake up tomorrow with a smile.  I recently re-read an email where Jeff explained that while in Cardiac ICU a few years back, at a time when things were looking bleak, Didja looked at the surgeons and said “She wasn’t afraid of dying … she just didn’t want to be there when it happened!”  She never lost her sense of humour.

So back to my week.  A few days before my Calgary appointment on Tuesday, I sent a message to Didj letting her know I would be in town, but not with Shaye, so I didn’t think I would have time for lunch.  I didn’t hear back, so I sent her a text on Saturday.  I received an email later that day from Jeff saying that she wasn’t feeling well, but they were in touch with Doctors trying to keep her home, rather than move her and her dialysis etc, to the hospital.  The next email said she had been admitted to ICU.  I quickly sent Jeff a message to see if she was at the same hospital I was headed to, to see if I could visit, if she was up to it.  After a chaotic morning with my doctors, we walked over to see her.  It was like hitting a brick wall.  I saw Jeff’s face, his worry.  I saw her, a shadow of her former self. She had lost more weight, and while she opened her eyes for a moment, I am not entirely certain she knew I was there, or what was going on.  I told her she needed to get stronger because I was counting on her smiling face to help me through next month!  I wanted to leave quickly, not because I didn’t want to sit with her forever, but because I felt she had so little energy, and it needed to be saved for Jeff and her daughter.  On the way home, I was reminded of an email she sent following one of her more recent scares when she discussed one of her biggest fears being the lessons she had yet to share with her daughter, and the possibility she would not get to share them.  I understand first hand how that is the biggest fear for any mother in that position.  While I prayed for the very best of outcomes, I somehow knew in that moment it was going to be the darkest of times for them and instantly my heart was broken.  I didn’t sleep for 2 days waiting and praying.

Didja passed away early Thursday morning.  We lost a good one.  I love you Didj, and I know I will forever see your smiling face, I’ll just have to look for it.

didja2

 

 

It’s a Date!

There is something about getting the actual transplant date today that rocked my world somewhat.  We have known this is coming for such a long time, I feel like somehow it should have been like any other phone call.  Like catching up with my husband to discuss who is driving whom to what activity that night, or scheduling a lunch date with a friend.  No, this call shook me and I wasn’t expecting it.  Somehow having a date makes things so much more real.  Now it’s time to start dealing with the little things.  Like really dealing with things.  For real.

What is the best way to help the kids through this?  Should we pull them out of school early?  Is it best to leave them with the structure of the school day?  Is it fair to leave them to write final exams after saying goodbye to me, knowing I won’t be back for months?  It makes my stomach turn.

Who is going to be my “full time caregiver” ( I need one assigned and in Calgary with me 2 days post transplant for about 2.5 months)  Of course Shaye and I would like it to be him, but what about work?  Kids?  Maybe we will have to submit a “list” of revolving caregivers.  Can we do that?

When will we leave for Calgary?  What will we decide finally about accommodations, that is  so hard to sort out when I will be in and out of hospital, but Shaye, the kids etc need to come and go?  We are surrounded by such wonderful people who have offered their homes as a place for us to stay. The BMT staff suggested staying close to the Tom Baker centre and have given us a few options to consider, but they are all costly when you consider 3 months time.   There are appointments here, and physicals there coming up, so much is going through my head, I feel a little lost in it all.

These are just some of the little things we will need to make decisions about soon.  I am praying they all just sort of fall into place, because the overriding thought for me today is that it is happening.  Risks and all things considered, it is happening.  I’m excited, and terrified.

It’s a date.  Just another day.  June 18th Admission.  June 26th Transplant Day.

Trish xo

The end of a crazy week, another lesson learned…

I removed the following from the “about me” section of the blog because I didn’t think it fit, and I wanted to elaborate. It was never intended to be about anyone specifically, but more about myself.

“We are now just waiting for the exact date.  My sister is a 10/10 match for my transplant, and she is totally on board to do what she can.  I have so many around me who feel the same.  I wish it hadn’t taken 6 years on this roller coaster for me to see how incredibly blessed I really am, and to let go of worrying about the people who don’t like me.  I was always so worried about trying to decide between fighting for my honour and changing into what people said I needed to be.  I was terrified of being judged.  It’s true what they say about letting go…it’s an incredible feeling.  When it doesn’t come from a place of anger, but a place of acceptance.  It’s ok if you don’t like me now.  I’m better with that than I have ever been.  I am a little sad, but I won’t waste time trying to change your mind.  I need my energy for bigger things right now, and maybe, just maybe, we are both better off accepting that.  Just don’t expect me to stop caring about you.”

Today was a great reminder for me, and an example of what I meant.  I have been overdoing it for days.  My daughter turned 14.  We had a birthday party for her on Monday for family (at a restaurant…at least I knew I didn’t have the energy to have 25 family members over for dinner!)  Tuesday I slept nearly all day recovering.  Wednesday was filled with Dr appts and running around.  I crinkled my grandma’s car (for the record, I have only ever crinkled HER cars…once when I was 17, and this Wednesday).  We received a “maintenance bill” for my husbands new vehicle for $700, I had to get my son packed and ready to go to Vancouver with his Grandparents AND my Grandma wasn’t feeling well, she weighed on my mind all day. Thursday we wakened at 4:00am to drive to Calgary for our meeting with my transplant Dr, and were home by 3pm.  Friday was a lot of sleeping again and baking for Caylie’s birthday party with friends on Saturday, and Caylie and I had a super fun time doing a Jamberry nail party for a couple hours in the evening together for some pre-teens.

Today is Party day.  It is also a big day for some of our family who are celebrating the 1st birthday and baptism of a very adorable little boy. I had agreed to make the smash cake for the party, was going to go bake cupcakes for Caylie’s birthday (8 13 and 14yr olds), decorate, go to his baptism, run home and wrap the gift, get the cake, drop it off, and leave Caylie and Shaye at home to start her party so I could remain at the 1yr old’s birthday party to show our support for the family etc, then race home to feed the hungry teens and finish off our party.  Sound crazy?  YES IT IS.

So, here is how it relates to what I was saying about letting go.  When I wakened this morning my BP was 154/116…then 170/121, then came the insane headache.  My body shut me down.  My first thought was who am I going to disappoint?  How will I be judged for not attending the other birthday party if I end up in bed all day?  I needed every ounce of my husband’s and daughter’s help just to get done what we needed to do at home, so I couldn’t even send him.  In the past, this would have eaten me up.  Now, I was able to just say I am sincerely sorry, but I can’t attend.  I dropped the smash cake off at 5:45, and that is that.  I can’t worry about who might think I’m snubbing them, or why we had to schedule Caylie’s party on the same day because we have 3 more family birthdays this coming week.  I thought about it, but I can’t worry about it.  It just is what it is.  No malice intended.  I wish I could have attended, it looked like it was a blast…and there are reminders all over Facebook of what a good time we missed. But that’s ok.  Don’t sweat the small stuff.  Especially the stuff we can’t control.  We can’t sacrifice our own health to go the extra mile out of fear of what others think of us.  I’m not perfect, and some would say I should have not taken on so much.  Others would say I should have done more.  I won’t waste time trying to convince anyone of anything. I know I am sure of a few things as I go to bed this evening.

1.  I did everything with the best of intentions to the best of my ability today

2.  I am feeling blessed.

3.  My BP is down to 152/108…not perfect, just like me, but better than it started.

-Trish xo

Hello World

I realistically should have started this about 6 years ago.  There is just so much to say, and where do I start?  In this very moment though, I am tired.  Very Very tired.  So, this very first blog post will simply be…Hello World.