The last couple of days have been so up and down. Where do I even start?!
First, the heat here is UNBELIEVABLE. It was just too much, and adding on the long stringy hair I started getting everywhere, the hair came off yesterday morning. I sleep soooo much better last night.
My blood counts continue to drop. This is a good thing. It’s going to take a few days for them to really tank, then I will start building the new immune system and stem cells.
So, along with that comes lots of crazy things. I’ll save you the nastiest of episodes. I am super tired sometimes. Like just can’t get up. Part of that is that they are also being aggressive in reducing prednisone. I am thankful for that for sure. When I came in 2 weeks ago, I was at 45mg. I’m now at 20 😳. That’s HUGE!!! My mouth has also started showing signs of all the chemo and radiation. My throat is super sore, and I have Esophagitis. It’s pretty normal for this stage of the game. My night nurse saved me last night and brought me a “pink lady” a mixture of lidocaine and other stuff she mixed together which I drink. It was amazing, I slept for hours after that.
I also have little successes. Today, I walked around the unit 5 times, that is huge for me right now, it felt good to accomplish something, even something little. There was a moment I thought “wow, I used to feel this way after a 5k run. Now look at me”. But I quickly shut that down. I’m allowed to celebrate the little things, and life has changed dramatically since then. (Plus, I’m burning calories just making bone marrow…so who needs to run?!)
Shaye has been holding my hand every day. I’m so blessed he can be here. One of my cousins wrote “Some days there won’t be a song in your heart. Sing anyways”. Such lovely words. This is how Shaye keeps the songs in my heart
The song is “Wonderful Tonight” by Eric Clapton.
Peace & Love
Trish xo
Trish G 
Trish, you are one amazing woman! I am so impressed with the positive attitude you have. Love to you, Shaye and the kids. You are a remarkable family!
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The music helps him too I am sure. Great therapy !!
Brings a tear to my heart every time read your blog , happy tears as you are on the road to recovery !!!
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Dearest Trish – where to start! Thanks for sharing your life – struggles and successes with us. Thanks for reminding us to hope and celebrate. And BTW – you are rocking’ the new do! It will get itchy about 4 days from now but your hair will come in super soft. Shaye’s going to love it. Keep singing and smiling. Peace and love from the Leflars.
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Praying for a full recovery❤️
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Perfect…you do look Wonderful tonight! You are doing this journey in small steps laced with grace and persistence. So very proud of you. ❤️❤️❤️
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Trish you are sooo rockin the No Hair GF !!
Even though you are there and have lots of support , and alot of us are here , we are not allowed to visit yet , but There are people here that love u , think about u and are routing for you ! Your are in my thoughts everyday! Keep it up Trish
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Sending strength and hugs to all of you Trish. You are so positive. You are in my prayers every night.
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You still look beautiful. You stay strong, we all love you and are here for you, Dear. Thoughts, prayer, and positive energy to you and the family.
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You are a pillar of strength, the epitome of grace and courage. Though I don’t know you personally…you are my hero. Thank you for sharing your journey. Peace & love
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Dearest Trish! I think of how strong of a woman you are and having your family behind you sure will help!! Every day I think of you as I am reminded of the countless days, minutes and hours that I recall being in the hospital with my little man. This time will give you the strength to battle through all the upcoming challenges that you will step forward and overcome!! Those you know and even some you don’t are following along with you and wishing you a easy journey. Many Hugs from a distance!!
Love Karen, family and friends!!
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Unit 57 is a very big track for 5 laps around! Good for you Trishg … You did a marathon! Keep going… Prayers for healing, strength and encouragement to keep going!
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You would know Karen. Thank you SO much for all of your help getting through this!!!
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Hi Trish: What a beautiful person you are. Our Lord is with you in every step you take in this venture. My prayers are with you always. Get your rest if you need it. God Bless you.
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At the moment I am sporting that same hairstyle heading into my third chemo treatment on Thursday. You look great and have a wonderful attitude. Best of luck to you on your journey.
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